The week started with a coffee with Veronika’s BFF Willow’ s Mum Sally, after I had dropped my three to school, yes all three and Sally had dropped her 3 girls to school too….so this was our 1st solo coffee without Veronika and Willow, we could have talked for hours, some things never change whether the girls are with us or not!
While we were coffee-ing my phone rang, I answered it as you kind of go into the my children are at school mode and what if it’s the school…. well it wasnt school at all….it was a lovely lady from Starlight Foundation, to welcome Veronika to their wish granting program, I almost promptly burst into tears, sitting there in the cafe…and she asked if I would like to start working on what Veronika would like….I asked if they could send some ideas, because Veronika doesn’t speak apart from 4 words, and she obviously has developmental delays, and she wouldn’t understand what it means to be granted a wish…..We had a brief chat and will talk more about it soon… After our phone conversation finished and Sally and I did the Wow, Wow, WOW, wholly awesome, then my mind turned to…oh so that means Veronika falls into ‘that’ category, the serious life long different ability category, and well that has been on my mind all week….yes I have always known Veronikas diagnosis is life long, she wont magically lose her extra chromosome at some magical age, her brain injury from her bilateral strokes in utero will always be there, that wont magically disappear at a magical age either, and so on, and so on…..but at the same time, there is no way that I would change Veronika, she is absolutely perfect just the way she is, and no diagnosis defines her….but as my best friend said “You mean by ‘that’ category, you mean a gorgeous, perfect little girl that has magical powers to make people hearts melt and that someone (ie starlight) have recognised her magical talents and gorgeous personality and want to do a wonderful thing for her than yes she does fall into ‘that’ category”
So what would Veronika wish for….I think an experience possibly….and something that I have always wanted to do is dolphin therapy with Veronika, and I am sure she would love it, being the water girl she is, so maybe that will go high on the list of options…but we will put a lot of thought into what Veronika would wish for…
Tuesday one of Veronika’s therapist called, firstly to see how Veronika was settling into school(isn’t that awesome that she was thinking of Veronika and wanted to know so she called) and secondly to say that she had the MRI report I had emailed over the weekend…and that she was very relieved that it didn’t show any new findings from Veronika’s previous MRI, because she was really concerned that a tumour in her brain may have been the cause of the seizures and the primitive responses that have developed since her seizures…I said to her, that yes that thought had crossed my mind, but I had never said it out loud because that would be like admitting it was a possibility…
And wednesday it was confirmed in my heart that we had enrolled Veronika in the right school…..some of you who read Veronika Will Walk on Facebook, would have seen this…
Q. How do you know that you have made the best decision to enroll your child with all her funky complexities, and who is dependent on a mobility aide, at the mainstream school her brothers go to, which is on the side of a hill? (and we all know walking frames and wheelchairs don’t go up or down stairs)
A. 3rd week of school, and her kinder class perform the song ‘Old Macdonald’ at assembly, complete with sign language, animals taught to them by Veronika ♥ Now that’s inclusion….and yes it took all my effort not to bawl like a baby, it was beautiful…and Im sorry I can’t share video with you all….just imagine a class full of 4 year olds singing and signing their hearts away….Thankyou to her teacher, TA’s and fellow students for such a magical moment for this Mummy
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