my girl and this cup…

My girl and this cup…..

At 7 years and 8 months old Veronika is getting the hang of drinking thickened fluid out of this cut out cup.

We have spent years(and lots of dollars)with therapists and every different type of cup, sipper cup, bottle, and straw made to try to get her to drink out of something other than her bottle and teat.

From when Veronika was a newborn in special care and we were trying to her her off the nasal gastric tube feeds, we had to use a special bottle called a haberman feeder. It was the only thing she could manage. She used that for months before we were able to transition Veronika to a regular teat.

Having dysphagia makes it hard for her, but I can finally see a light at the end of the tunnel.

Veronika hasn’t had a bottle for 7 days….a whole week!!!!

I’m spending an hour and a half to 2 hours a day sitting holding the cup for her to get enough fluids into her to keep her hydrated as she can’t manage to hold the cup yet herself, but I’m just so excited to finally be getting somewhere with her drinking.

It’s a huge milestone for our girl that we have been working on for years 😊🌟

I must say a huge THANKYOU to the gorgeous ladies Sue and Priscilla atMedela Australia for supporting Veronika on her journey…we have been buying teats in bulk at a discount from Medela for years because Veronika going through so many.

‪#‎veronikawillwalk‬ ‪#‎veronikawilldrink‬ ‪#‎medelaaustralia‬ ‪#‎cerebralpalsy‬‪#‎trisomy21‬ ‪#‎dysphagia‬ ‪#‎peptijuniorformula‬

Veronika Will Walk, our Ups and Downs with Cerebral Palsy's photo.

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