I’ve been thinking so much lately about this roller coaster we are riding on our journey with Veronika as it comes to the time she is to start school in a month….for me it was bitter sweet when we finished at Early Childhood Intervention Services(Veronika’s school she started when she was only 7 weeks old)…

who would have thought when I got out of bed this morning that I would be crying over a toilet seat by lunch time… well today was just like another day….we got up, got ready to start the day, and got ready to leave for Veronika’s therapy appointment with her physio and occupational therapist…today was…

as you know its been a big week on Veronika’s journey following another seizure the week before christmas….. the changes in Veronika walking in her frame is shattering for me….so much therapy to be redone, her little legs are so unstable and her gait has never been llike it is now. Then there are all…

Coming into this time of year people start making resolutions for the following year….for our family its simple…if Veronika can change just one persons perception for seeing ‘disability’, to seeing the person, not a diagnosis then 2013 will be fabulous, lets keep changing perceptions one person at a time ♥  

Monday December 3rd was International Day for People with a DisAbility…. We celebrated a day early at an IDPwD event hosted my Tascare society for Children…we had a great day, so we were planning on having a quiet day monday with no appointments, a quiet day at home to catch up with the home duties,…

November 1st 2012…. what a day, and what have I learnt today…advocating for your child is hard work, its relentless, it exhausting mentally, and so draining emotionally….my emotional bucket has run dry….but that won’t stop me, Veronika is too precious to not give her every opportunity in life. I dont like the system, and more…

October 28th……NDIS, National DisAbility Insurance Scheme…. This photo was taken earlier in the year at a rally to show support for the NDIS, something every person living with a different Ability needs to get the suppo rt, equipment and therapy they need ♥ I also made this clip to show Veronika’s support of the NDIS,…

to walk to talk to eat… these have been my big 3 goals for Veronika….well for a long, long time…. we are starting to get on top of ‘to eat’, but we still have such a long way to go, Veronika needs to eat, not only for nutrition, but also to develop the muscles in…

October 20th…. … Uniqueness…Every person is unique, and Veronika is Veronika 1st, she happens to have an extra chromosome(DS), and cerebral palsy, a congenital heart defect as well as other ‘diagnosis’ too. All people need to be referred to by their name, not a diagnosis they have. Our children are unique flowers, that all together…