This was my face book status Friday night “this time 3 years ago, I was waiting to be induced, as the stress of Veronika’s stroke, pre birth was too much to cope with, and I hadn’t really slept for 3 weeks since it was picked up…..praying for the best possible outcome as we were told…

Veronika had her Opthamology appointment last Friday. We set off early as her appointment was at 8:30………yep they were running late and we saw the Dr just before 10am. He had a look at her eyes and then said they would need to put some drops in, and he would need to have a look…

Well we finally had some good news about Veronika on Monday. We went to see her paediatric cardiac cath surgeon in Melbourne. Last year we went to see him in July after her having pneumonia every 4 weeks. She had a hole (ASD) in her heart that was 19mm. He decided that it needed to…

The last almost 3 years have gone so fast, but in particular the last 6 months. For those of you that have joined on our journey hear is a quick run down of Veronika’s Cardiac Journey….. Veronika on the 14th May, 2008, her Birth Day   Veronika was diagnosed with Down Syndrome at birth. 1…

On Monday we saw Veronika’s dietitian. She has recommended that for 2 months we eliminate wheat, gluten, eggs, dairy, soy and rice milk….in the hope that Veronika will start to eat. So far for the rest of the week, it hasn’t really had any effect on increasing her food intake, but I will continue to…

Yesterday we celebrated the life of one of Veronika’s greatest supporters….Karina passed away suddenly and unexpectedly last week. I know that one day in the future when Veronika Walks, Karina will be looking down clapping and cheering. I had the privilege of sharing at her funeral…. In life there are people who you have been…

This past week is one I will never forget. Monday I actually had half a day at home and one of my best friends Karina came over. Her hubby was unwell, and was at home resting and her 2 youngest children were asleep(they are 1 and 2), so she called and came over for a…

I just have to give you all a quick update about Veronika Will Walk Gala Events for May 28th. We have had a change of venue, we will now be at Youth ARC at 44 Collins Street, Hobart. Youth ARC are more than happy to donate their building for us to use for the Gala.…

Today Veronika had her appointment with her Brain Injury Rehabilitation Specialist. He was really happy with Veronika’s progress over the last 6 months. Last time we saw him, he wanted Veronika to be weight baring at a coffee table by the next time he saw her. I remember as we left last time the physio…