It’s world cerebral palsy day today……Miss Veronika showed everyone one the ward what’s she’s made of by doing not one but 2 laps of ward 42 north this afternoon…..mighty proud of herself too as she should be.

My girl works so hard at everything she does. We were told ‘realistically Veronika would not walk again after her hip reconstruction’. I said to the ortho we were told after Veronika’s 1st MRI when Veronika was a week old that she would never walk, and she did, if anyone can learn to walk twice…

October is Down Syndrome Awareness month, I personally prefer Down Syndrome Acceptance Month….I think the greater population is ‘aware’ that there are people who have Down Syndrome….but there needs to be more acceptance. I believe acceptance early on in a persons life who has Down syndrome. Way back to those who choose to have the…

We went for a walk to the local Coles supermarket in between Veronika’s therapy sessions today….was great to get out of the hospital for a walk and some sunshine…..even if it was to get some groceries! Veronika has been working hard in her therapy sessions, and her occupational therapist at Monash children’s hospital was most…

Miss Veronika has a nasty chest infection so she missed her athletics carnival for school today…..spent the day at home with Dad and enjoyed watching some of The Wiggles….apparently this is where she had to sit at one stage!

Veronika went to a birthday party for her friend Ellie, and my girl wanted to write her name in the card…..usually Veronika writes her name as ‘V’ but we have been working on her writing ‘Vee’ for her name and she did such a great job….especially as I was once told by a therapist she…

Veronika has been writing a ‘V’ for her name for a couple of years….we are now working on her recognising and writing ‘Vee’ for her name, because let’s face it we couldn’t of picked a more suitable name for our girl, it needed to be a strong name, but it’s also a difficult name to…

This afternoon I dropped Veronika to school for the first time after missing 16 weeks of school, she hasn’t been since before easter….it’s been a tough few months following her hip reconstruction. Things didn’t go to plan, I was anticipating Veronika returning to school weeks ago, but we all know my girl writes her own…

When Veronika was admitted to Monash Childrens hospital for her hip rehab, I was asked if Veronika had sleep apnea(as apnea’s can often happen in children with Down syndrome). I said I wasn’t convinced Veronika did have sleep apnea but at the same time I wasn’t convinced she didn’t . So the plan was to…