Love the arrow on the foot, this is the leg for examination under anaesthetic! Everything went well, always reassuring when your child’s orthopaedic surgeon says ‘I tried to dislocate her hip and I couldn’t, it all seems really stable’. Veronika recovered well from the anaesthetic, has had a couple of drinks of her formula this…

These are the supplies I have used over the last week for Veronika’s pressure wound care…..*touchwood* we are finally winning the pressure wound battle again. Daily dressing has been dropped back to every 3rd day. Thanks to some wonderful support from our Paed home care team and wound care nurse at our local hospital. #woundcare…

I know I’ve said it before, and I’m sure I will say it many times again….my girl is amazing. We have had a crazy week since returning home from Royal Childrens Hospital last Friday….Veronika has developed a nasty nasty pressure sore from her plaster and has had appointments everyday except Tuesday to try to manage…

Again not the quiet day we wanted but when you email your surgeon and he says take Veronika to emergency to get her plaster adjusted and her pressure spots re-dressed in the morning that’s what you do. So glad that even though Veronika’s surgeon is in another state we are able to contact him for…

What a huge 10 days we have had on Veronika’s journey….I continue to be amazed by my girls strength, determination and positive energy. Veronika amazes me with what she copes with and this last 10 days has been no exception. The massive surgery she went through on April 16th, some challenges/complications following surgery, yet she…

This morning we were asked if some medical students could do an exam with Veronika as the patient, the Paed doctor asked if we had done this before which of course we have and of course we said that would be fine. Afterwards I asked Veronika if she wanted to go downstairs again and see…

Veronika and I are so blessed to have so many people sending positive thoughts, messages, prayers, healing juju, text messages and phone calls during this challenging time on Veronika’s journey to health and mobility. Today we were excited to welcome a couple of friends who came to visit. This morning Kerry came in to visit…

Off to the plaster room this morning to have Veronika’s plaster adjusted where it was getting a bit tight. The lady explained to Veronika that she would use the saw to make the cuts but it only cuts plaster and showed her on her hand how it doesn’t get skin, Veronika held her hand out…

Veronika’s had a much better day today thank goodness….24 hours ago she was looking like she was heading to being rather unwell. Veronika spent most of this morning sleeping. This afternoon Veronika went downstairs to have her hip X-ray done and the doctor requested a chest X-ray as well to make sure that nothing looks…