The pathology request no parent of a child with trisomy 21(Down syndrome) wants to see with their child’s name on it.   Children with trisomy 21 are at an increased risk for developing leukaemia than typically developing children…. and petechia ( http://en.wikipedia.org/wiki/Petechia ) in children with trisomy 21 can be a marker for leukaemia…. the last few days…

5 years and 4 months ago, at a routine 36 week into the pregnancy checkup my  world changed…. It was revealed our yet to be born baby had a severe brain abnormality…. 5 years and 3 months ago when Veronika was a week old, she had her first brain MRI….   which showed Veronika had…

So Miss Veronika had a big seizure sunday last week during the night, that went for 10 minutes and we couldn’t wake her….She wasnt making any noise, and I only noticed her through the video monitor we have above her bed, that has a screen that we can use to watch her(this is the one…

you may of read this blog I wrote during the week, just some ramblings that this time I published… https://www.veronikawillwalk.org/2013/06/how-does-a-parent-decide-which-is-the-most-important-therapy-to-do/ I had a gorgeous friend Holly message me, and she said that maybe its time to fundraise and see if we can help get Veronika the funds for the therapy and equipment she needs. So…

I have been struggling for a few months to decide which therapy to focus on ‘the most’ with Veronika. Veronika has been accessing therapy well since she was only a week old, 1st was speech therapy because Veronika found it incredibly difficult to feed, and then physio soon after….then when she was discharged from hospital…

I cant believe that the last 5 years have flown by so fast….5 years ago I was in hospital waiting to be induced in the morning, praying that our baby girl would be born ALIVE, praying that she would be well enough to get a quick CUDDLE before she would be taken off to NICU,…

for those of you who have been on our journey with us for  a while you would know those 3 little words that changed my life, 5 years ago today… ‘are you ok’…..I was at my routine 36 week checkup, when my Obgyn noticed that our yet to be born baby had a severe brain…

Easter is a time of celebration….but this year again,  I found it hard to celebrate, it saddens me that Veronika has no concept of the joy of Easter…. During last week I had been remembering the joy of my childhood, and waking up Easter Sunday ready to go on the traditional ‘easter egg hunt’ with…

The week started with a coffee with Veronika’s BFF Willow’ s Mum Sally, after I had dropped my three to school, yes all three and Sally had dropped her 3 girls to school too….so this was our 1st solo coffee without Veronika and Willow, we could have talked for hours, some things never change whether…