October 20th…. … Uniqueness…Every person is unique, and Veronika is Veronika 1st, she happens to have an extra chromosome(DS), and cerebral palsy, a congenital heart defect as well as other ‘diagnosis’ too. All people need to be referred to by their name, not a diagnosis they have. Our children are unique flowers, that all together…

October 10th…….her eyes, her eyes…..one of the characteristics of people with DS is almond shaped eyes with an upwards slant. They also have small skin folds on corners of the eyes, called epicanthal folds….Veronika has amazing eyes, perfect the way they are ♥ October 11th……..like all children, some nights Veronika just doesn’t want to go…

October 3rd…….Veronika’s Birth Day, one of the most magical days, because Veronika survived her birth, approx 70% of babies with DS don’t make it that far…. October 4th,……..Veronika was given her medical Down Syndrome diagnosis the day she was born, however to be clinically diagnosed with DS they had to ‘grow cells’ for her ‘official’…

  October 1st 2012     Down Syndrome Awareness Month… People with Down Syndrome have an extra copy of the 21st chromosome, instead of two 21st chromosomes they have 3(thus why Down Syndrome is also known as Trisomy 21)….so Veronika and people with Down Syndrome have 47 chromosomes, and those without DS have 46 chromosomes,…

    This morning after I had dressed Veronika, she went up to her room to ‘explore’, or as I would call it, pull things out of the cupboard….I gave her a few minutes while I did the breakie dishes, and then went to get her as we were off to BrightStars dancing class. When…

This week hasn’t been the best for Veronika, after having that nasty skin reaction last weekend, which has effected not only Veronika’s skin, but her gut reaction, and a certain unwelcome behaviour started again,  hitting her head. We saw Veronika’s dietitian on Monday, and Veronika’s Speech Therapist was meant to come to the appointment, but…

We have been so busy with therapy, life, therapy, playing, therapy, feeding, therapy…..you get the idea!!! that the blog has been a little neglected of late, so I am endeavouring to catch up on some of the happenings of the last month, so there might be a few in a row….if I don’t get distracted……

4 years 3 months and 2 weeks ago we began a roller coaster of therapy sessions…. why as most of you know, Veronika suffered a massive bilateral stroke before she was born, it SHOULD of killed her, we were told, it would have killed any adult….. Veronika had her 1st brain MRI when she was…

About a month ago, at Veronika’s regular visit with her dietitian from the hospital at the hospital…she decided she wanted me to try the RPAH Failsafe Diet, because we have tried everything else in an attempt to get Veronika to eat…. FAILSAFE stands for Free of Additives, Low in Salicylates, Amines and Flavour Enhancers. I…