Category: Posts

  • WOW…18th January 2016 Veronika see’s her rehab specialist

    ‘Wow’ One tiny word that packs a punch….. Today Veronika saw her rehab specialist…. He came out to the waiting room where we were, and my girl stood up and took off walking up the hall…..and her specialist stood there, watched Veronika and said ‘wow’. He hadn’t seen Veronika walking independently since her hip reconstruction.…

  • my girl and this cup…

    My girl and this cup….. At 7 years and 8 months old Veronika is getting the hang of drinking thickened fluid out of this cut out cup. We have spent years(and lots of dollars)with therapists and every different type of cup, sipper cup, bottle, and straw made to try to get her to drink out…

  • Upset at pathology because she wasn’t having a blood test!

    You know your a special needs parent to a child who writes their own book…. When your child screams down pathology Because Veronika wasn’t having a blood test(I was) and Veronika wanted one done! I don’t think the pathology lady knew what to make of the situation, Veronika was crying real tears and holding up…

  • For all the special needs mummies, daddies and carers I know…

    For all the Special Needs mummies, daddies and carers that I know and totally rock: 1. Because they never thought that “doing it all” would mean doing this much. But they do it all, and then some. 2. Because they’ve discovered patience they never knew they had. 3. Because they are willing to do something…

  • 7th January 2016…my girl surprises me, call the doctor

    Wow…..sometimes my girl surprises me big time with what she does. We have just got back from my parents because I noticed Veronika’s ear was infected and she needed to see the doctor. The joys of having a child with such a high pain tolerance level you don’t know anything is wrong until it’s clearly…

  • 5th January 2016…more life skills

    ‪#‎lifeskills‬ This morning I came out from cleaning the bathroom and Veronika was putting a load of clothes into the washing machine….she then opened the detergent drawer and pointed up into the cupboard for me to get the detergent out…so I did! As soon as the load finished and Veronika heard the beeps she went…

  • 31st December 2015

    JOY! Pure joy 2015 was full of challenges for Miss Veronika. Then there was ‪#‎joy‬ because we made it through a tough year. Happy New Year ‪#‎veronikawillwalk‬ ‪#‎cerebralpalsy‬ ‪#‎downsyndrome‬

  • 30th December 2015…life skills

    Opening and closing textas/highlighters, something most of us take for granted….but when you have ‪#‎hemiplegia‬ on one side of your body and severe ‪#‎hypotonia‬ everywhere, this is really ‪#‎hardwork‬ and an amazing skill to master. ‪#‎veronikawillwalk‬ ‪#‎veronikawillwrite‬ ‪#‎cerebralpalsy‬‪#‎downsyndrome‬ ‪#‎bilateralskills‬ ‪#‎lifeskills‬

  • 29th December 2015, a trip to Richmond

    This afternoon we went for a drive to Richmond, which is a beautiful village about 30 minutes from our home. We walked over the oldest bridge in Australia that is still in use(it was build in 1823) Veronika wanted to go and see the ducks in the river. Jordan then pushed Veronika back up the…