Never a Dull Moment….
What other people say about Veronika….Wednesday, January 5, 2011
What other People Say About Veronika Last year I came across a resource called “What I’d Like You to Know About Me” or “About Me” for short. I was offered to opportunity to create one
To google or not to google…Wednesday, January 12, 2011
To Google or not to Google…. To Google or not to Google?, That is the question…..Last October when we saw Veronika’s paediatrician, I asked if we could see a baby neurologist. I was shocked when
Tuesday, January 25, 2011
Stop yelling at me! Another busy couple of weeks have passed. We are back to the normal 4-5 Doctor and allied health appointments a week, so there is still never a dull moment in the
Wednesday, January 26, 2011
Maybe some answers tomorrow!?!? Tomorrow we are off to see Veronikas occupational therapist early in the afternoon, then after that we are off to see the pediatrician. Maybe we might get some answers about the
Friday, February 11, 2011
My Little Climber….. Miss Veronika has learnt to climb! She climbed onto the couch all by herself in late January. I was and still am one very HAPPY Mummy. I have to admit it was
Wednesday, February 16, 2011
Back to the normal routine….. Well our boys Jordan 8 and Jakob 6, have been back at school for 2 weeks, which means that Veronika and I have gotten back into the swing of the
Sunday, February 20, 2011
My Little Project…. When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou….No really THANKYOU. Oh my goodness, What a week. What started our as my latest blog post, about my little project, to get Veronika a hydrotherapy spa, to give her every chance to
Yet again, so much has been going on……
Veronika was asked to be an Ambassador for St Giles Walk With Me. It is on this Sunday 16th October. Starting at the Lawns of Parliament. Veronika has been going to St Giles since she was 8 weeks old. We started off seeing a Physio there and an Occupational Therapist and continue to. We have also seen a Speech Therapist there, and its the St Giles pool that we go to weekly. So it was our pleasure for Veronika to be an Ambassador and give a little something back, to St Giles who have supported us so much on her journey to mobility, and continue to.
Veronika and Willow have joined forces and have registered a team for Walk With Me, and naturally their team is Walk With the SuperGirls…..explains itself really. If you are free this Sunday please come and show your support for Veronika, and Walk With Her, or if you want you can follow the link and donate to Walk With the SuperGirls.
http://wwmhobart.gofundraise.com.au/page/SuperGirls
As you know from my blog in September, Veronika has begun to ‘cruise’ a little bit along the blanket box. So today was a very exciting day, we went to get her measured for a walking frame. Her physio was going to put the order in today, so fingers crossed it will be ready Wednesday next week, when we see her Physio next. Then to see if she can manage it with her left side(side affected by Cerebral Palsy). In particular her left hand, as we don’t know if she will be able to hold on to support herself.
I have spent the last 2 weeks stressing over how much Veronika is drinking, or rather not drinking. She usually drinks close to a Litre of formula, but for the last 2 weeks she has all but stopped eating, and is only drinking 350-400mls of formula. I called Paediatric outpatients asking to see her Paediatrician, and was able to get an appointment 3 days later, when she was next in. In the mean time, they said take her to the GP and get her checked that there is no reason she isn’t drinking. Of course the GP couldn’t find anything, and agreed that yes she did need to see her Paediatrician, and was glad we had an appointment. When we went to see her Paed, as we were going into her room, she was commenting on how well Veronika was looking…..I agree yes she is looking the best she has looked in a very long time….she just wont DRINK. She asked Veronika if she drinks, to which Veronika signed “drink” followed by “milk”….and then she asked her again if she actually drinks, to which Veronika grunted and shook her head. After a thorough look over, she could see no medical reason Veronika wouldn’t eat, except to “stress her mother out”…..”which appears to be working”. Yep had to agree with that diagnosis! Her Paed was very impressed that Veronika could ‘cruise for her chocolate’, and said maybe we need to use some old fashioned bribery and corruption…..
